Autistic children
Autism awareness Autism training Autism events
 

Oxfordshire Autism Partnership Board meets for 1st time: notes of meeting

Notes from the Oxfordshire Autism Partnership Board
29 September 2011
The Oxfordshire Autism Partnership Board is an opportunity to provide joined up services across the whole County across all ages in partnership

Present:
Parents and people with autism
• Faye Brewerton (FB)– parent and person with autism
• Janice Juneman (JJu)– parent
• Sarah Hewitt (SH) – person with autism
• Paul Isaacs (PI) – Autism Oxford and person with autism

National Autistic Society
• Jo Clay (JC)
• Rachel Reid (RR)
Autism Oxford
• Kathy Erangey (KE) – parent
Autism Family Support
• Gita Lobo (GL)

Local government
Oxfordshire County Council Children, Education and Families
• Alison Blaylock (AB) – Special Educational Needs Support Service
• Janet Johnson (JJo) – Special Educational Needs Lead
• Netta Buckett (NB) – Early Years
• Sarah Ainsworth (SA) – Children’s Disability Service
• Sarah Breton (SBre) – Joint Commissioner
• Sue Edwards (SE) – Special Educational Needs Support Service
Oxfordshire County Council Social and Community Services
• Ann Nursey (AN) – Lead Commissioner, Learning Disabilities
• John Dixon (JD) – Deputy Director, Adult Social Care

Health services
• Juliet Long (JL) – NHS Oxfordshire
• Sally Powis (SP) – Ridgeway Partnership, clinician
• Yvonne Taylor (YT) – Oxford Health NHS Foundation Trust

Social care provider
• Sue Osborn (SO) – Kingwood Trust

Apologies:
• Fenella Trevillion (FT) – NHS Oxfordshire
• Marian Roiser (MR) / Wendy Cliffe (WC) – Parent Partnership
• Michele Harding (MH) – Oxford Health NHS Foundation Trust
• Sue Brooks (SBro)– Connexions

Summary of Actions
JL
• Interim evaluation on employment pilot project to be presented at January meeting
• Oxfordshire Employment Services needs to publicise referral process
EM, JL
• Look also at sub-group membership to ensure not too big a Partnership Board
• Complete the DH assessment tool and present in January
EM
• Further clarity over roles and governance/ election of Partnership Board membership
EM, SP
• Wider discussion on training at next Autism Partnership Board
• Make additions to membership
• John Walton – Oxfordshire GP
• ORH paediatrician
• More clinicians – e.g. Children and Adolescent Mental Health Services
• To amend 4th bullet on terms of reference to read, ‘together we do more’
• For next Partnership Board, Our Dream: Where we want to be in 10 years’ time
EM, PI, KE
• Story from Oxfordshire: Paul Isaacs
EM, JD
• A clear summary at the end of each meeting to show forward movement
JJo
• Ask and confirm SEN Head Teacher + mainstream Head Teacher
SA
• Invite Children, Education and Families Early Intervention Service
YT
• Clarify Oxford Health membership – adults and children’s services

A Story from Oxfordshire - Janice Juneman
Janice talked about her story supporting her son through school and at home.
Key issues:
• Her battle to get a statement
• Move to special school at Year 5
• Difficulty using out of school opportunities
• Distance to travel to get to appropriate activities
• Lack of specialist input
• Initial mis-diagnosis – and still no clear route for families
• Isolation of family
• Ongoing vulnerability of her son
• Non-eligibility for specialist activities because his disability is not physical
Despite all this Janice’s son achieved 3 good GCSEs and is now doing AS-levels

Setting the national scene
Growing awareness of the needs of people with autism and their families over recent years led to local action.
A letter from Kathy Erangey to senior managers in Oxfordshire County Council and NHS Oxfordshire showed how difficult things were for people and families.
A small working group began to untangle what was available and the level of need in Oxfordshire.
A needs assessment for people with AS/HFA aged 14 and over was carried out by Autism Oxford
The Autism strategy and national best practice led to a wider view.
The Autism Steering Group looked at current resources and where they are used.
A workshop in Thame in 2010 looked at big gap in care pathways for people with autism to live an ordinary life.
Not everything is in place yet, but the commitment in Thame has paved the way for the Autism Partnership Board.

Winterbourne View
See also: http://www.cqc.org.uk/search.cfm?widCall1=customWidgets.search_do_2&ocl_id_filter=EDITORIAL%2CNEWS%2CEVENT%2CSCOPINGPARENT%2CCOUNCIL%2CGUIDANCE&search_string=winterbourne+view
Winterbourne View was an assessment and treatment health service in South Gloucestershire.  A Panorama programme in May exposed poor practice by staff supporting and caring for people placed there. Winterbourne View has now closed.
Many people who used Winterbourne View had autism.
The abuse at Winterbourne was not picked up by the Care Quality Commission, commissioners of services, professionals or families.
Both children’s and adult services in Oxfordshire try to place very few people out of County. Monitoring of these placements needs to include in-depth observation and working closely with families.
See attached presentation.

Current workstreams
See attached papers.
Additional notes as appropriate:

Alert card
Steering group includes courts and Thames Valley Police
4 launches planned:
• South and Vale took place in July
• Cherwell will be in December
• West and Oxford city will follow later.
79 cards issued with age range from 3-84.
Request to alert card steering group to be part of Oxford Divert Scheme for people coming into criminal justice system and to visit Bullingdon Prison.
Alert card packs available from: http://www.autismoxford.org.uk/index.php/alert-card

Employment
Oxfordshire Employment Services taking over from Right Employment as from 28th September.  Both workers have transferred to the new organisation.  Pilot project will be testing how long support is needed for people with autism.
Action: JL – Interim evaluation to be presented at January meeting.
Action: JL – Oxfordshire Employment Services needs to publicise referral process.

Training
GPs have been hardest to reach but there is interest
Autism Partnership Board needs to go back to GPs and find a way in – ideally training should be for everyone in the GP practice
Need to recognise drivers and levers for training
A basic e-learning tool has been developed and several GP practices have signed up
Work in National Autistic Society is at an early stage
Recognition that a join-up is needed between training provided by children’s services and Ridgeway Partnership
Training for parents and families recognised as a need
Action: SP, EM – Wider discussion on training at next Autism Partnership Board


Terms of Reference and Governance
Action:  EM – To add to membership:
• Paediatrician at Oxford Radcliffe Hospitals
• More clinicians – e.g. Children and Adolescent Mental Health Services
• John Walton – Oxfordshire GP
• Action: JJo – Ask and confirm SEN Head Teacher + mainstream Head Teacher
• Action: SA – Invite Children, Education and Families Early Intervention Service
Action: EM, JL – Look also at sub-group membership to ensure not too big a Partnership Board.

Action: EM – Further clarity requested over roles and governance/ election of Partnership Board membership.
Clarity to be sought about Oxford Health NHS Foundation Trust membership
Action: YT – ensure adult services representation, probably through commissioning
Action: EM – To amend 4th bullet to read, ‘together we do more’.
Action: EM – For next Partnership Board, Our Dream: Where we want to be in 10 years’ time.
Action: EM, PI, KE – Story from Oxfordshire: Paul Isaacs

Department of Health Assessment Tool
South West Strategic Health Authority has used this tool to help them support local area in their autism services development
Our monitoring tool should take into account our local strategy.
Both services for adults and children should be included.
Action: EM, JL – complete the tool and present in January

Post-meeting thoughts:
Paul to lead joint presentation on how meeting could work better
Good to see commitment and willingness even if direction is not yet clear
We need to think about supporting parents on the autistic spectrum in dealing with professionals
We got together and started
We need to think ourselves into person centred services and away from service land
We need a couple of quick wins to encourage parents and families
Action: JD, EM – A clear summary at the end of each meeting to show forward movement

Next meeting
Thursday 19th January 2012
Ridgeway Partnership training rooms, Horspath Driftway, Oxford OX3 7JH

 

 


Website designed by Designeleven
Facebook Twitter LinkedIn